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Burning Down the House...on Tamoxifen

10/13/2017

4 Comments

 
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The Talking Heads’ Burning Down the House plays in my head as I wonder how many times am I going to forget that I have something on the stove? Or something in the oven? Or that I’ve pulled something OUT of the oven and need to turn it off? One morning last week my kitchen felt exceptionally warm as I stumbled toward the coffee maker only to discover that I had left the oven on all. night. long. Why the need to keep my local fire department on speed dial?
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Scraping what was left of my blackened mixed vegetables. OK, charred. Blackened sounds better.
I blame it on Tamoxifen.

I began taking the estrogen-blocking drug February 20, 2017. The mind fog and forgetfulness didn’t kick in right away I don’t think, but then again I can’t remember for certain - Ha! What was immediately apparent was I became seriously depressed. Not "I just want to stay in bed in my jammies with the covers over my head" kind of depressed. But "I think I may swerve into this oncoming semi and end it all now" kind of depressed. Suicidal. Life for me wasn't looking good.

If you look at the cancer drug's list of common side effects, depression isn't one of them. "Feeling sad or empty" are listed in the 'less common or rare' categories. So is thinning hair and difficulty concentrating. Yeah, I got all that, too. But from what I've heard from other breast cancer warriors on Tamoxifen depression isn't uncommon.  Some of the more common side effects include
absent, missed, or irregular periods (that's because your body is thrown into menopause), feeling of warmth (a man must have written that. All women know that's a hot flash,) and weight loss or gain. Much to my amazement I'm in the weight loss category. Can I get an amen? (For a complete list of possible side effects click HERE.)
PictureI take half a pill in the morning and half at night and each time pray that the Lord would allow it to keep cancer at bay with minimal side effects.

One day as I sat home alone in my robe, crying and wrought with despair, I had a little pep talk with myself. I said, "Kim, either A) your body will adjust to this medication and you won't always feel this way or B) the doctor will give you something to overcome this depression or C) you will quit taking this medicine, even if it means a shorter life span, because you will NOT continue through life feeling this way.  What also didn't help my emotions was the fact that I wasn't sleeping. Oh, did I mention Tamoxifen can cause insomnia? (again, it's listed as rare...I must be special.)

I knew the importance of staying on this drug to prevent recurrence, at least in the short term, and was willing to do everything within my power to remain on it.  What helped most was moving. No, not across country. I was driven to workout practically every day. I walked. Rode my bike. Swam laps. Lifted weights at the gym. Watched Fixer Upper while huffin' it on the treadmill. Come to think of it, I should look a heck of a lot more fit than I do! Oh, well.

I also started taking all the supplements accumulating in my kitchen cabinet that I knew were good for my brain: fish oil, magnesium, vitamin D, etc... My goal was to feel better without anti-depressants. There’s no shame in taking them when needed, but I was scared to introduce another drug and its potential negative side effects into my sensitive system. It took 4-5 months before I reaped the benefits, but I’m grateful that my new regimen eventually helped!

For someone reading this who is reluctant to fill their Tamoxifen prescription, I can tell you that a little over 7 months into it that my side effects are pretty minimal. The worst of mine now deal with ageing and initially that was distressing. I can't lie to you. My skin started thinning and sagging what seemed like over night. Fine lines cropped up on and around my lips. For a girl who spends more time in front of the mirror than she'd ever be willing to admit...it was (and is sometimes) hard. That's when you have to realize that we're all going to age if we live long enough, and better for it to happen sooner and experience life thanks to Tamoxifen than to die sooner with radiant, taut skin.

"Your beauty should not come from outward adornment, such as elaborate hairstyles and the wearing of gold jewelry or fine clothes. Rather, it should be that of your inner self, the unfading beauty of a gentle and quiet spirit, which is of great worth in God’s sight."
~ 1 Peter 3:3-4

I’m hopeful that once I've completed the recommended 5 years of this drug that perhaps the hands of time will slow down a bit. And since my depression has already lifted maybe my memory and fuzzy brain will improve, too. Oh, I forgot to tell you that Wednesday when I left the gym and was in the parking lot I tried to get into someone else’s truck using the door's keypad. It was in the general vacinity as mine. When I got home my husband asked was it at least the same color? I told him, "Yes!" and we both got a good laugh out of it.

Something tells me I'll be burning a few more meals over the next handful of years, so may as well learn to laugh and add Taste of China to our speed dial as well.

4 Comments
Kristen
10/13/2017 10:04:39 pm

I don't know what your talking about with the skin thing. Everytime I see you I think you're radiant! It's true what they say about smiling, that it makes a bigger difference on your appearance than anything else, and you are always smiling when I see you, so you always look beautiful!

Reply
Kim
10/14/2017 05:08:10 am

Kristen, you are so sweet! Thank you for the kind reply. I guess we are our own worst critics. I certainly see the changes in my physical appearance (feel it too) but I'm thankful it's not as obvious to others, apparently! :-) It's easy to smile around you, btw!

Reply
Deann Saint
10/15/2017 09:25:10 pm

You hit the nail on the head Kim. I took Tamoxifen for a little over a year, after which time a test showed I was post-menopausal. I was able to come off of it, but only after experiencing foggy memory, periods of crying, fatigue, severe insomnia, and weight gain; which by the way was merciless. I had managed to gain 28 lbs in 1 year. I've successfully been off of Tamoxifen since March 2017 and feel amazing! My heart goes out to you and the despair you must have felt during the early stages of taking it. I can't imagine life without seeing your smile... It lights up the room 😀

Reply
Kim
10/16/2017 07:06:34 am

Thank you for sharing that Deann and for the lovely compliment!! You're making me smile now! :-) Sometimes it's good just knowing you're not alone, ya know? I still have insomnia as well. I look forward to the day that I can quit taking this drug. I'm thankful you're off of it and feeling so good!! Are you on something else? You could send me a PM when you have the time.

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    Author

    Funny that the title "Author" appears above this description yet I have no idea what to share about myself in this space! How about my first name is Kim. My last name is Tisor. Tisor rhymes with miser, though I try not to be one.

    Working in Christian radio earns me a little spending money so I'm less miserly and fulfills my desire to uplift others who are walking (or limping along) this sometimes arduous road we all call "life."

    What can you expect from this blog? Well, I'm not exactly sure. I think I'll include faith-related content and posts about joy discovered while on  my cancer journey. I may share cancer-related news and as a wife and mom I'm fairly certain observations pertaining to family life will seep in here on occasion.

    As you visit, remember that Tamoxifen Brain is a real thing and I'm convinced I have it. So, if something I write doesn't make sense, feel free to laugh at me.  I won't know any better and laughter is good medicine, especially when it's at someone else's expense. That's a joke.

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